Thursday, June 25, 2009

More Info about Mr. Will

First of all let me say that if there is anyone who didn't know about what was going with Will, it was purely because I didn't want to worry anyone with good reason. That being said, I wanted to post some more about Will in a little more detail.
Will started to spit up when he was about two months old and it had been getting worse. Sometimes it was projectile, other times it was just flowing out of his mouth over and over again and more times than not, it was painful for him. One time it was the color and consistency of mustard. So I brought it up to our pediatrician who immediately ordered an upper GI.
We had the upper GI done last Friday. On Monday the doctor called me to let me know that it was very likely that he had intestinal malrotation. From my understanding, that is basically when your intestines are flipped-his small intestine is on the left side instead of the right. Our doctor wanted us to meet with a surgeon as soon as possible.
We set up an appointment to meet with a surgeon at Children's Hospital on Tuesday. We got a copy of the Upper GI and brought it with us to our appointment with the surgeon. They sent it on to have their radiologist read the films. So we waited and waited, talked to a nurse and gave her his symptoms, and waited and waited. The doctor came in and said that he films should be read soon. So we waited and waited, played 10 games of hangman on his white board, and waited and waited. Then the doctor came in and said that there had been a miscommunication and the radiologist hadn't read it yet-she didn't know we wanted it read that day. So we waited and waited and waited and waited. 2 1/2 hours after we got in for the appointment the doctor finally told us that the test was inconclusive and we needed to do it again. But because he had just eaten, we would have to do it later in the afternoon. If the test did in fact some back showing intestinal malrotation, Will would need surgery and the doctor would want to do it on Thursday. Luckily it would be done laproscopically. Awesome!
So I took Carson to work, scrambled to find another babysitter for the girls, pick them up, get them lunch, and get them over to another babysitter. Help came in the form of my dear friend Jaime who was more than willing to take my girls for me. I'm so grateful for wonderful friends who will step in to help at a moments notice.
I got back to Children's Hospital for the second Upper GI only to find out that the surgeons assistant had inputted the time wrong in the computer. So I went in for a 3 pm appointment but it was in their computer for 2 pm. Again, awesome! But they fit us in. The test went just as bad the second time as it did the first. He hated every minute of it. But we got it done. The radiologist read it and had a few of her colleagues read it as well. They all came to the same conclusion-no intestinal malrotation. They feel that he has what is called a redundant duodenum. Basically its when the duodenum has a few extra curves and loops in it. Apparently its easily mistaken for malrotation. In the end, no surgery is needed and we're going to treat the spit up and pain as reflux. I spoke with the doctor today and as soon as we get home from Utah we will start the reflux medicine. I really hope it helps!

1 comment:

mattyanddeidre said...

I'm so glad he doesn't need surgery. I hope the reflux medicine works. What a relief.